Earlier this week, Jennifer and I returned home from another visit to Dallas (my fourth visit to Texas Neurology related to the HEALEY ALS Platform Trial), and a week in Orlando visiting with my family and a few circles of friends.
This trip to Dallas was the first of several clinic visits to ensure I’m following proper protocols for the trial, including making sure my daily shots are being self-administered correctly and whether I’m experiencing any side effects. Thumbs up from the doctor on my ability to self-inject!
Just hours after my appointment, we hopped on a plane for Orlando to visit with my kids and my two grandsons. Our visit included taking my grandson Caden, now eight, to his first Maker Faire – which he loved! Caden screen-printed his own tee-shirt and met his favorite Star Wars characters.
Spending time with my three kids and two grandsons was extra special, as always, but our week was topped off by a special event hosted by fellow Antilles High School friends: Pirates One Step Closer – Team Jose. Thank you, Anthony Claudio, Ana Neris, Chery Pugh, and Ily Fajardo Bengoa, for organizing and hosting the event.
It was also lovely to see many fellow Pirates in Team Jose tee-shirts coming together to support my journey from around the mainland!
My heart and spirits were lifted by the love, support, and aloha given to my family and me all week.