I was honored to be featured in a profile story published this week in Current, the nonprofit news …
My heart exploded two weeks ago, and then I got Covid
Two weeks ago, my heart exploded, but in a good way! My son, Ian, his wife Nephtys, and my grandson, …
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Caregiving with Covid
Last year on the Summer Solstice, we shared our story publicly about José's diagnosis. This year …
Call for Applications: 2022 ALS-CLRI
The Northeast ALS Consortium (NEALS) is seeking self-nominations for the 2022 ALS Clinical Research …
ALS awareness month
The month of May is ALS awareness month! It’s a good time to advocate and to learn more about this …
A series of special visits
The week after we returned from our trip to Denver, I had the pleasure of hosting my younger …