The day after we completed our spring membership campaign I was invited back as a guest on Hawai‘i Public Radio’s The Conversation, our local daily talk and news program, to provide an update on my ALS progression, my experience with the Healey ALS Platform Trial, and to provide my perspective on the recent decision by the FDA to not approve a drug that many of us in the ALS community believe has significant benefit.
The live interview was conducted this past Friday, April 8, 2022. Click to listen, and enjoy my conversation with host Catherine Cruz.
I heard the original broadcast over HPR; very informative, good job. Scientific method: the best we have, but not always the full story. Imua!
Wow Jose!!! Your amazing. Your voice, words, positive tone gives hope to all! Your in our prayers! So is your Angel Jennifer!
Only thing to say- still my hero!
Thankful you have Jennifer. Continued prayers for strength and miracles.