May is ALS Awareness Month. This month also happens to mark the two year anniversary of my official diagnosis, though my symptoms began in the Fall of 2019.
My sister, Rebekah ‘Kika’ Duncan, submitted my name to be included on one of 6,000 flags placed on the National Mall during the #ALSinDC event earlier this month. The flags represent the 6,000 people diagnosed with ALS each year. Many of the names appearing on flags at this year’s event include those, like me, battling the disease. Some names honor those who have lost the fight.
As a reminder, ALS is a fatal disease with no cure. Most folks have a survival of just 2 to 5 years from their diagnosis. My goal is not only to beat the odds of reaching five years but to continue to live for many years after that.
❤️ To all the friends who have reached out to me with personal messages of support and love, thank you. Your continued support will help us achieve an #ALSFreeWorld.
Keep fighting Jose.
You are my hero , always have been
Rebecca Wood Wyatt
Someone has to beat the odds and I’m confident you’ll be the one!
No one is beating it better than you!
An amazing positive spirit with that contagious smile, a great support network of friends, family and doctors and all the technology and gadgets you can get your hands on!
Keep fighting Keep Enduring!
Marjorie C Mrasek
You are our hero!
You’re a ROCK My brother, LOVE yas
You model courage for everyone you touch…IMUA!