The Northeast ALS Consortium (NEALS) is seeking self-nominations for the 2022 ALS Clinical Research Learning Institute® (CRLI). People living with ALS, caregivers, friends and family members residing in North America who have not attended a previous CRLI are encouraged to apply. Jen was selected to participate in last year’s CLRI which was convened virtually through Zoom.
We are also exploring the possibility of helping to bring the program to Hawai’i in 2023. If you are interested in supporting us in making that happen, please be in touch – we are seeking to maximize in-kind support and minimize any fundraising to cover the costs of the event. Examples of in-kind support / costs include:
- a safe and comfortable meeting room for up to 30 people (including AV, accessible access to the meeting space and restroom facilities, parking, etc.)
- refreshments and/or meals
- possible ground transportation support for attendees to get to/from the meeting
- possible air travel support for instructors and neighbor island participants to get to O’ahu
- lodging for the instructors and/or neighbor island participants
- event planning and coordination if/when we commit to a date and venue, inclusive of the participant application and registration process, event promotion, in-person logistics, and communication with event partners and sponsors
For those of you on the mainland–especially if you live in or near Florida!–you may be interested to attend the in-person annual event which will take place in Clearwater this November. Continue reading for complete details and application instructions.
The ALS-CRLI is a two-day program that empowers attendees to be strong advocates in the field of ALS by educating them on clinical research and the therapy development process. Certification as an ALS Research Ambassador® provides opportunities to influence and improve the ALS research process
The 2022 NEALS CRLI will take place November 3 – 4, 2022 in Clearwater Beach, Florida. Attendees will have two days to learn from and interact with leaders in the field of ALS, including Dr. Richard Bedlack (Duke ALS Clinic), Dr. Merit Cudkowicz (Sean M. Healey & AMG Center for ALS at MGH), Dr. Terry Heiman-Patterson (Temple University), Dr. Eric Macklin (Sean M. Healey & AMG Center for ALS at MGH), and Dr. Jeremy Shefner (Barrow Neurological Institute).
NEALS will cover the cost of travel and a one-night hotel stay for selected participants. In addition to participating in the ALS-CRLI, attendees will be invited to attend the 21st Annual NEALS Meeting.
Applications are due July 25, 2022.
Please direct any questions to Carly Allen at callen@neals.org or (913)370-6321.
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